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Rank: Member
Groups: Registered
Joined: 5/11/2011
Posts: 19
Location: taunton
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hello everyone, havent been on for a couple of months as our daughter got married in july, so i missed the taunton meeting that month and then, because my hearing has deteriorated so much, had to see the ENT Dr who sent me for a heat mri. good news i have a brain, located in the head (not the little toe as the hubby insisted!) the found a tumour on the acoustic nerve, so awaiting surgery to dispose of it. now i know why i fall over so often, and slur alot, without the aid of alchol! great meeting on tuesday night, jonathan wood was informative about the different types of painkillers and how generic meds are the same as the named ones. tereasa was excelent, i didnt realise that some of the meds started being used so long ago. xxxx
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hi Marie
I know that is not a wonderful diagnosis but at least they have found the cause of your problems and can rectify it. I hope you haven't got too long to wait for your op.
Sheila x
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Rank: Member
Groups: Registered
Joined: 5/11/2011
Posts: 19
Location: taunton
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thanks Sheila,
i'm still waiting for the letter from Frenchay, its taking its time, but as i feel ok i can wait. at least i can hear now they fitted a hearing aid!
marie xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Marie Good to see you again. As Sheila said, it's not the very best diagnosis you could have had but you now know what you are dealing with and the surgery should make a huge difference. Love Jeanxxx PS I'm glad they found you have a brain - I doubt if theywould find mine, it's so small  xxxxx
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Rank: Advanced Member Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Marie
So sorry that you have had such a bad time. I hope Frenchay sort you out quickly. Poor you.
I thought the meeting was good on Tuesday as well. Sorry I didn't see you. Perhaps next
time.
Take care.
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Marie, You certainly have had a time of things, I do so hope you are seen quickly and make a full recovery. Take care Lorna x
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Rank: Member
Groups: Registered
Joined: 5/11/2011
Posts: 19
Location: taunton
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thanks all.
how is everyone?
i'm still waiting, rang the ent dept, who said i should have heard, but they are resending the letter. it has gone missing, just my luck!
i was looking around for you Rose, quite a full meeting!
been in a sleep induced mode at the moment, shattered all the time and cold, mr m is too tight to put the heating on, oil is expensive, so i am rebeling and lighting the fire, only draw back is i have to get them to get the wood and coal in. am bribing stephen at the moment, and inviting the son in law up for dinner works. he gets a weeks supply in at a time.
the kids photo is in the gazete this week, in the wedding bit. bit late they lost the photo as well!
lots of love marie xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Marie, Sorry you`re still waiting, and hope you get seen quickly : it`s infuriating when letters go astray.I don`t blame you for lighting the fire - definitely cooler up here in the NE too! Take care, Kathleen x
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Marie
How annoying that the letter went astray. Grr . it does appear to happen a lot doesn't. I thought most the
consultants wrote to each other by e.mail these days. . . . . Oh well, but I am sorry that you are having to
wait you will be so anxious.
Yes invite the Son in law and get the wood brought up for you. Nothing worse than being cold. A gorgeous
day today though. Hubby and myself went to the sea front today and watched the yatch and had an ice
cream - just the job.
Rose
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Rank: Member
Groups: Registered
Joined: 5/11/2011
Posts: 19
Location: taunton
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hi all.
well been to bristo, and saw an oncologist, seems the little blighter is deep seated and they dont or cant remove it surgically. its going to have to be nuked, to hopefully stop it growing, so now i am well fed up.
if it has grown since july, its a course of radiotherapy, if no its a large shot of radiation to the head, pinpointed on the tumour. at least its not cancerous, just a pain!
have a great xmas all, take it easya
marie xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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oooh nuked! you ARE special huh?
surprised the NHS and its cash strapped bosses havent decided to ask you to pop your head in the microwave....! 
Listen, I have this friend who has grown one of these things on her pituatory gland. Again op not possible but they have done a MRI Wait and see approach there. She kept having awful migranes and it took ages for them to do the MRI but once they did they could immediately see the tumour.
I know one other man with a similar issue- he only found out because they couldnt have a second child and did the tests and now he takes tablets to sort the hormones out. He had the radiotherapy to try and shrink the tumour last year and now takes daily meds to keep it small I guess. Again no cancer thankfully but scary for his wife and daughter.
I am going for cyclophos in the new yr and bit scared...
In solidarity....
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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oooh Marie I have somehow missed this post-----sounds a persistent little blighter. Good Luck with all the treatments-thank goodness these things are there. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hi Marie
Good luck. I hope the 'nuking' works then you don't need to have the radiotherapy. Best wishes for Christmas.
Sheila x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hope the treatment works well for you Marie.
Love Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 6/18/2010 Posts: 351 Location: Herne Bay Kent
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Hi Marie
Sorry to hear your news but hope they quickly get your treatment underway and you get some relief from the symptoms.
A real fire sounds great, keep the son-in-law happy!!
Best Wishes
Sue
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hope the "nuke" works for you Marie. Please take care, and I send all my best wishes for Christmas & 2012. Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Marie,
hope things go well for you,
sending best wishes.
Suzanne x
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Marie,
So glad that the tumour is ok. However thinking of you and wishing you all the best for the treatment.
I take it it will be in the New Year. Best Wishes for Christmas and New Year.
Rose
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Rank: Member
Groups: Registered
Joined: 5/11/2011
Posts: 19
Location: taunton
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thanks all,
i am now awaiting. hope you all have a good, and painfree xmas. love marie xx
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